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Meeting with Stanford and MD Anderson.

  • Writer: cass.muchmore
    cass.muchmore
  • Dec 10, 2021
  • 1 min read

Hi my wonderful tribe!

I just got scheduled with Dr Ganjoo at Stanford sarcoma dept in Palo Alto for Jan 5th. I will fly from there to Seattle for infusion in the 6th and then back home. side note - these docs aren’t easy to get in with. This specific one I had to send clinicals to and they decide if they will take U on as a new patient. It’s nuts!

Jan 24th I meet with Dr. Ratan at MD Anderson in Houston, Texas.


Both of these docs/clinics are well known for LMS. Up until now, I was committed to the trail I was in at SCCA and it took up a lot of my free time. Now I need all the options! different clinics offer different trials, some docs may recommend surgery, others may refuse. There are so many choices to make with this diagnosis and not much time to make a decision when first diagnosed. I feel like we made the right one thus far as my tumor growth has stabilized. We are just preparing for what’s next and getting all the options.


Thanks for reading our update. wishing everyone a truly wonderful holiday season! Xoxo

Cass

 
 
 

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Scan looked good!!!

Phew! No spreading or growth. Surgery will be the 27th. We got this!!!

 
 
 

14 Comments


jdquickster
jdquickster
Dec 24, 2021

I'm so glad you got in with these new options! Sending love and hope to you and your beautiful family. You are a strong fighter... keep up the good hard work. Hang in there my friend.

Love,

Jen

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bmuchmore
bmuchmore
Dec 16, 2021

I'm so glad that you are doing all the right things and checking out all your options. We pray for you all the time. YOU GOT THIS Love you Dad

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Diane Dean
Diane Dean
Dec 11, 2021

That is good news! Exploring options and working with the best docs. We continue to pray from here for all! Love and hugs from Kenz and I...

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cass.muchmore
cass.muchmore
Dec 13, 2021
Replying to

Miss you ladies!

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briannahale3
Dec 11, 2021

I love that you are exploring all your options and are working with the best of the best! Way to take charge of your health! Can’t wait to hear how your appointments in Paulo Alto and Houston go. Love you!

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cass.muchmore
cass.muchmore
Dec 13, 2021
Replying to

You so have to be your own advocate. luckily, I understand this medical/insurance crap:) love uuuuuuuu

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Nessa Wilson
Nessa Wilson
Dec 11, 2021

Stay strong warrior woman! You amaze me with your incredible attitude and driven spirit. sending positive healing love vibes!! 11:11

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cass.muchmore
cass.muchmore
Dec 13, 2021
Replying to

Totally made a wish at 11:11 this am. thought of you! 🤗

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